Medical Update: Ongoing Investigations into Autoimmune Conditions and Epilepsy ManagementPosted on January 30, 2026
Dear readers and followers,I am providing this update to share details regarding my recent health challenges, which have impacted my activity and professional engagements. This post expands upon my recent announcement on X for greater context and transparency.As many of you who follow my work in OSINT conflict reporting and investigative journalism are aware, I have managed arthritis and autoimmune-related issues for several years.
These conditions have periodically been severe, affecting my ability to maintain consistent output. In early January 2026, following a flare-up exacerbated by a viral infection, I sought medical attention from a general practitioner for a routine antibiotic prescription, as my primary physician was unavailable.Upon examination, the doctor initiated comprehensive diagnostic testing. This included standard autoimmune blood panels and screening for rheumatoid arthritis.
Given concerns about a potentially more serious underlying condition, additional targeted tests were ordered, including assays for Anti-Scl-70 antibodies and an immediate CT scan of my lungs upon receipt of preliminary results.These investigations were specifically designed to assess for systemic sclerosis, commonly known as systemic scleroderma.
The CT scan focused on evaluating the possibility of diffuse cutaneous systemic scleroderma (dcSSc), the most aggressive variant, which frequently involves pulmonary complications.Systemic scleroderma is a chronic autoimmune disorder that can result in significant morbidity. When it affects the lungs, it may lead to interstitial lung disease or pulmonary hypertension, both of which are serious and potentially life-threatening.
Based on contemporary medical literature, patients with lung involvement typically experience 5-year survival rates ranging from 70% to 90%, and 10-year rates from 66% to 84%, influenced by factors such as disease severity and timeliness of treatment.I have deliberately refrained from publicizing these developments earlier, as prematurely disclosing a potential diagnosis of this gravity could lead to unnecessary alarm, particularly if subsequent evaluations rule it out.
Nevertheless, my reduced online presence has prompted speculation, and I deem it appropriate to offer this clarification to my audience.The diagnostic process has been profoundly stressful. Results have indicated evidence of lung involvement, and certain physicians have hypothesized a seronegative autoimmune disorder, potentially including seronegative rheumatoid arthritis or systemic scleroderma. On January 30, 2026, I consulted a rheumatologist to further investigate and either confirm or exclude these autoimmune conditions.
In parallel, my epilepsy management necessitates additional intervention. I am scheduled for inpatient Video EEG Monitoring (VEM) on February 16, 2026. This hospitalization, spanning 5-7 days, aims to stabilize my epilepsy, assess the efficacy of my primidone therapy, and screen for other neurological concerns.To provide visual context, below are relevant diagnostic request forms that illustrate the scope of testing undertaken
1: EEG and Evoked Potentials Request Form]
for Routine EEG, Day Video EEG, Inpatient VEM, Ambulatory EEG, and Evoked Potentials.
requested test as CT (chest), and clinical details as “?Scleroderma”.
ANA, Anti scl-70.
Additional Blood Test Request Form freehand tests: RF, ANA, ESR, CRP, DSDNA, FBE, HLA-B27 screen.
I extend my gratitude for your patience and support during this period. I commit to sharing further updates as developments arise and as my health permits a return to full productivity.Should you have questions or require resources on these conditions, please consult qualified medical professionals. This post is for informational purposes and does not constitute medical advice.
I am about to see the rheumatologist as I make this announcement. Likely to do more extensive testing. I thought it important to give some transparency as even if I am okey. It’s a stressful situation a lot of people go through and rather than hideing allowing speculation. People knowing allows some understanding of my cercumstancs. I don’t like talking about my private life but it’s better to have some idea than let speculation fuel ideas thst dismiss me and the real pain me and my family go through constantly with these issues.
tothe mostly right wing audiance i have with maturity and understanding thank you, especially my Eastern European netstalkers and Russians with Anime girl avatars. Thank you for being fun during this stressful period :3
Best regards
kianlayer0
